A mother, who was given a new lease in life through charity fundraising, has met with scientists in search of a cure.
Lorraine Hughes-Gage, from Chingford, and friend's Kenneth Slade, Amanda and Lesley Nunn, met with researchers from Epliepsy Research UK at a Royal Society reception on May 18.
Ms Hughes-Gage's daughter Lucy Brooks, died from Sudden Unexpected Death in Epilepsy (SUDEP) aged 28 in 2011.
A memorial fund was set up in her name and to date, has raised more than £47,000 for Epilepsy Research UK through events such as the Great North Run and the Three Peaks Challenge.
In 2014, Ms Hughes-Gage marked her 60th birthday with six fundraisers, including a Purple Day collection, National Epilespy Week fair, the Penine Way walk, London to Brighton cycle ride and a charity ball at Lucy's former school.
Her efforts last year raised over £11,000.
She said: "All the support and encouragement has given me the drive to carry on fundraising.
"Epilepsy Research UK has given me back a purpose in my life, and I am now busy planning new events for this year."
Leigh Slocombe, chief executive of Epilepsy Research UK, added: "We are hugely grateful to Lorraine and all her wider family and friends for their tireless fundraising to support our research in memory of Lucy, and for making such a significant contribution to our research grant awards.
"This will fund much-needed new research to help transform the lives of those living with epilepsy today."
Comments: Our rules
We want our comments to be a lively and valuable part of our community - a place where readers can debate and engage with the most important local issues. The ability to comment on our stories is a privilege, not a right, however, and that privilege may be withdrawn if it is abused or misused.
Please report any comments that break our rules.
Read the rules here