A MOTHER who lost her baby daughter to a rare neurological disorder is facing the awful prospect of losing her son to the same illness.

Keeley Johnson is urging the public to dig deep and make donations to Haven House Children’s Hospice, in Woodford Green this Christmas.

Keeley’s son, Logan, was born in December, last year, with Leigh syndrome, a severe neurological disorder which causes rapid muscle weakness, affecting mobility, feeding and breathing.

Keeley lost her first baby, Evelyn, to the condition in 2014, when she was seven-months-old.

Haven House cared for Evelyn during her short life, providing Keeley with time for precious memories.

Keeley was still grieving Evelyn’s death when she found out she was four and a half months pregnant with Logan.

She was terrified that her new baby would also have Leigh syndrome, but after initially appearing healthy, she thought she could now enjoy being a mum again.

However, at five months Logan stopped drinking and feeding and began to cry lots.

She was told he had reflux but Keeley knew in her heart he too had Leigh syndrome, and soon after, her worse fears were confirmed.

Haven House is now supporting Keeley and Logan through another difficult journey.

Logan has lost his smile, makes no sounds and is not able to sit up.

Keeley said: “I lost my precious Evelyn at seven-months-old, so this Christmas is special to me as I am fully aware that it could be Logan’s last.”

Over the last few months Logan has developed epilepsy and is having about ten seizures a day.

The majority of these are at night, meaning Keeley is not getting much sleep.

Keeley said: “When we do go out it’s mostly to hospital to have endless tests or meetings with various consultants.

“The one trip that we do look forward to every week though is to have music therapy at Haven House.

"Logan gets so excited, he reaches out and listens and I see expressions on his face that I have not seen before.

"I like to think he is trying his best to smile at his mummy.

“I know that when the time comes to say goodbye to Logan, Haven House will be there to support us for as long as we need it.

"You cannot overestimate how much that means to me.”

To read more about Haven House’s Christmas appeal, visit www.havenhouse.org.uk/christmasappeal, or call 020 8498 5841 to make a donation.